Familial Dysautonomia Fundraiser

My son Justin is sponsoring a fundraiser in honor of his friend Danny who has FD. There will be a DJ Party for teenagers and their families at the New York Comedy Club on February 20th at 7:00 P.M. The Club is located at 8221 Glades Road in Boca Raton. Donations are $15 per ticket. Additional contributions are welcome. Contact Justin at justjeter2@bellsouth.net.

FD is an abbreviation for Familial Dysautonomia, a rare, fatal, genetic, neurologic disease present at birth. Kids with FD live in very unstable bodies.  All their internal functions are unpredictable. They are prone to wide swings in blood pressure and heart rate, rapid decline of oxygenation and life-threatening autonomic crisis. The children who are susceptible to this disease are the product of parents who are both from an Ashkenazi Jewish background.